Informed consent

Informed consent is the idea that when you study people or collect data from them, those people should participate voluntarily – ideally with a good understanding of the research, how the data they provide will be used, and any potential risk to themselves. However, there is no generally agreed set of consent practices for civil society or development projects to follow. So, where to start? These resources suggest ways of thinking about informed consent when your project involves the collection, use and sharing of data.

Looking back at 2016 in the Responsible Data community

As the year draws to an end, we’d like to take a moment to celebrate the Responsible Data community, and to take a closer look at all the amazing things that its members have accomplished together this year. Thanks to the Responsible Data community, 2016 has been the year of stimulating dialogue, practical challenges in […]

Social media intelligence, the wayward child of open source intelligence

Would you mind if, every time you post a comment on Twitter, Facebook or another social media platform, the police logged it? I mean, it’s public – surely it’s fair game? If you think that’s OK, then maybe it’s also OK for a police officer to follow you when you walk down a busy street. […]

This resource can help you with: No categories
Issue areas: Identity, anonymity & privacyInformed consentPeople’s agency & ownership
social media intelligence

Responsible Data Concerns with Open Source Intelligence

Open source intelligence (OSINT) is based on publicly available information, both offline and online. OSINT has proven itself to be extremely valuable in a wide range of industries, from business intelligence to investigative journalism and humanitarian relief. Corporations such as Goldman Sachs use publicly sourced market and political intelligence to identify risks, while international NGOs protect their […]

resonsible data open source intelligence osint

DataKind UK’s approach to addressing responsible data issues for the Citizens Advice Bureau project

Datakind UK and Citizens Advice Bureau (a British organisation that gives advice to citizens about their rights) recently collaborated on a project to make better use of the CAB’s data, finding that: Getting the most out of data without compromising confidentiality and privacy is tricky. It presents some genuinely difficult judgments as organisations weigh the risks and benefits, and is […]

This resource can help you with: Managing dataSharing Data
Issue areas: Data re-useIdentity, anonymity & privacyInformed consent

Respecting privacy when publishing data from police departments and freedom of information requests

Alice Brennan, Fidel Martinez and Susan McGregor on dealing with data from the police, lawsuits and freedom of information requests in a way that respects privacy, with examples, at SXSW: Transforming and linking public records from Miami Gardens reveals public harassment: over half the population had been stopped and frisked. …Much of the story’s power comes from the concentration […]

This resource can help you with: Sharing Data
Issue areas: Identity, anonymity & privacyInformed consent

Utopian and Dystopian Theories of Change – A Template

Widely-held Opinion (to which I subscribe): There is a huge amount of potential power to be unlocked in non-profits using technology in their quest for positive change in the world.

This resource can help you with: Getting DataManaging dataResponding to crisisSharing Data
Issue areas: Data qualityData re-useIdentity, anonymity & privacyInformed consentPeople’s agency & ownership
This resource was produced in a Responsible Data Forum.

Responsible data challenges in humanitarian and advocacy organisations: what are the differences?

We were excited to take part in an event in late February on ‘Responsible Data for Humanitarian Response’, which aimed to better understand how humanitarian organisations can collect and manage data in a way that respects individuals’ rights to consent, privacy, security and ownership

Informed consent challenges for photography in low-resource contexts

This paper from BMC Medical Ethics discusses ethical concerns of researchers using photography in countries including Nepal, Malawi, Gambia, Cambodia, Sierra Leone, Thailand, Zambia and Peru: Obtaining full informed consent was considered the biggest challenge to “ethical photography”. The meaning of informed consent seemed to vary from a relaxed interpretation to full disclosure of risks and […]

This resource can help you with: Getting Data
Issue areas: Informed consent