Informed consent

Informed consent is the idea that when you study people or collect data from them, those people should participate voluntarily – ideally with a good understanding of the research, how the data they provide will be used, and any potential risk to themselves. However, there is no generally agreed set of consent practices for civil society or development projects to follow. So, where to start? These resources suggest ways of thinking about informed consent when your project involves the collection, use and sharing of data.

Responsible data challenges in humanitarian and advocacy organisations: what are the differences?

We were excited to take part in an event in late February on ‘Responsible Data for Humanitarian Response’, which aimed to better understand how humanitarian organisations can collect and manage data in a way that respects individuals’ rights to consent, privacy, security and ownership

Informed consent challenges for photography in low-resource contexts

This paper from BMC Medical Ethics discusses ethical concerns of researchers using photography in countries including Nepal, Malawi, Gambia, Cambodia, Sierra Leone, Thailand, Zambia and Peru: Obtaining full informed consent was considered the biggest challenge to “ethical photography”. The meaning of informed consent seemed to vary from a relaxed interpretation to full disclosure of risks and […]

This resource can help you with: Getting Data
Issue areas: Informed consent

Photos are data too

If you take a photo of someone for a project, have you explained how the image will be used in future? How will you ensure that everyone within your organisation uses that photo in the right way?

This resource can help you with: Managing data
Issue areas: Informed consent