Informed consent

Informed consent is the idea that when you study people or collect data from them, those people should participate voluntarily – ideally with a good understanding of the research, how the data they provide will be used, and any potential risk to themselves. However, there is no generally agreed set of consent practices for civil society or development projects to follow. So, where to start? These resources suggest ways of thinking about informed consent when your project involves the collection, use and sharing of data.

RD Book: Shooting your hard drive into space

This book, organized around the data lifecycle, highlights responsible data concerns, recommendations, and real-world examples in the context of international development programming.

This resource can help you with: Awareness-RaisingGetting DataManaging dataResponding to crisisSharing Data
Issue areas: Data qualityData re-useIdentity, anonymity & privacyInformed consentPeople’s agency & ownership
This resource was produced in a Responsible Data Forum.

Developing Consent Policies

This framework includes a rationale for why consent is worthwhile and necessary,  and a checklist for developing appropriate consent policies and practices.

This resource can help you with: Getting Data
Issue areas: Informed consent
This resource was produced in a Responsible Data Forum.

Modeling Consent Policies for Civil Society Data

Warning: this is a blogpost for the especially interested or very particular type of geek. It goes deep into the weeds, in order to suggest how civil society organizations should determine appropriate content for consent policies.   There are a number of thorny ethical issues that accompany data’s tremendous potential for civil society, and consent […]

This resource can help you with: Getting Data
Issue areas: Informed consent

Responsible Data Forum on Private Sector Data Sharing

This post is crossposted at Global Pulse and Data & Society Research Institute. On July 24th, approximately 30 experts from private sector, academia, civil society, law, and philanthropy convened in New York for a Responsible Data Forum on the topic of private sector data sharing for the public good. The topic of “data philanthropy” is ripe for exploration and interrogation, […]

This resource can help you with: Sharing Data
Issue areas: Identity, anonymity & privacyInformed consent